tag:blogger.com,1999:blog-4292047283172458442.post3983935544327234216..comments2023-08-06T06:36:31.593-07:00Comments on Reuben Jack & Callum Andreas: You just put your lips together and blow...Catherine Lhttp://www.blogger.com/profile/01317263336127123398noreply@blogger.comBlogger7125tag:blogger.com,1999:blog-4292047283172458442.post-91868110761368544152010-10-18T12:42:00.463-07:002010-10-18T12:42:00.463-07:00What an awesome day!! Never thought how much I wo...What an awesome day!! Never thought how much I would miss all the appointments and decisions to make....Unknownhttps://www.blogger.com/profile/09293646572564999830noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-11391094623947482512010-10-15T18:38:20.319-07:002010-10-15T18:38:20.319-07:00We did some talking to plastics about this exact s...We did some talking to plastics about this exact same surgery for Kennedy but it just seemed like such a long, complicated surgery and we weren't willing to risk anaesthetic for it at this point, especially given the abnormalities commonly found with regard to nerves in kids with CHARGE (many are found with CI surgeries). If it's something she wants to pursue in the future, we will support her and do what we can for her but it wasn't worth the risk for us right now after hearing all about it from the plastic surgeon. <br /><br />I am sure whatever you decide will be the right one for Reu and you all. xoxoAnonymoushttps://www.blogger.com/profile/13927097159499432650noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-10619171889248424552010-10-15T14:29:11.859-07:002010-10-15T14:29:11.859-07:00oh my ~ I love your blog (and your blipfoto) ~ and...oh my ~ I love your blog (and your blipfoto) ~ and I love how you cherish life and hold all your moments in so much love ~ <3 How amazing to find Scotty and myself mentioned in today's precious post with so much kindness. The honor was all ours. Those were precious times and we were incredibly grateful to have been any part of it. To be able to do anything for you was in a way reaching back to ourselves a little too <3 <3 <3 Your family is beautiful ~ much loveypersicohttps://www.blogger.com/profile/13400721360333735457noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-81815514036136245862010-10-15T07:07:55.439-07:002010-10-15T07:07:55.439-07:00that is an amazing skill!! Also sounds like you al...that is an amazing skill!! Also sounds like you all are super busy!!<br />Keep it up Reuben!!<br />Love,<br />Crystal and EvaCrystal M.https://www.blogger.com/profile/09376837454606037081noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-43896182033838736842010-10-15T00:12:38.664-07:002010-10-15T00:12:38.664-07:00catherine i would say dont go the ear surgeyr you ...catherine i would say dont go the ear surgeyr you can ask crys on fb bout evas reconstruction i actualy dont think it worked if u look at pics it still looks and crys has said its hasgone back to its old ways but yes do the tubsAnonymoushttps://www.blogger.com/profile/18213376110986906604noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-40306143031278085202010-10-14T22:25:09.683-07:002010-10-14T22:25:09.683-07:00I know how much you guys helped us in the beginnin...I know how much you guys helped us in the beginning...<br />I remember the first time I set eyes on Reuben, how much hope and inspiration he gave us for Moriah. <br />We love the updates. <br />xo,<br />VictoriaVictoria Nelsonhttps://www.blogger.com/profile/16960722132671858895noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-49211751928736171612010-10-14T16:19:34.555-07:002010-10-14T16:19:34.555-07:00Still dreaming of the day when my son can blow on ...Still dreaming of the day when my son can blow on my face :) It's all those small silly things that I catch myself missing. <br />As long as today was, with Dr. after Dr., there is something to be said for getting it all done in one day. I feel like we go back and forth for this appointment, and that appointment wishing that they'd value our time a little more.<br />High five to Reuben for being so patient and I'm going to practice the abc's with both hands too - haven't done that yet!!Tanyahttps://www.blogger.com/profile/17540457944569036938noreply@blogger.com