tag:blogger.com,1999:blog-4292047283172458442.post4528004238204787034..comments2023-08-06T06:36:31.593-07:00Comments on Reuben Jack & Callum Andreas: Cranial Facial clinic - a shopping list of plastic surgeryCatherine Lhttp://www.blogger.com/profile/01317263336127123398noreply@blogger.comBlogger9125tag:blogger.com,1999:blog-4292047283172458442.post-89443338000748149952011-02-23T10:03:25.818-08:002011-02-23T10:03:25.818-08:00Hi Cath,,
I read your blog and...your kiddo
Reub...Hi Cath,,<br /> I read your blog and...your kiddo <br />Reuben undergo a lot of facial lists..so many..first time I encounter like this..But I know your kid is strong and can take on anything..We parents can do everything for our children..So..<br />Keep praying and I hope it'll be success..All is Well..Keep it always in your mind..<br /><br /><a href="http://getbotoxmelbourne.com.au/" rel="nofollow">Botox Melbourne</a>Pyrohttps://www.blogger.com/profile/02147424901346206364noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-13554075255833341762008-03-24T01:58:00.000-07:002008-03-24T01:58:00.000-07:00Catherine, so much for you both to take in! Howeve...Catherine, so much for you both to take in! However, at least you are getting good attention and fingers crossed for the oesophagus/trach scope on 31st March, tell hope his oesophagus is healing well. <BR/>Yes, a wish list from the Drs and I think it sounds that your are getting some great feedback/advise from the other mums of Charge children on their experiences of surgery, risk/benefits decisions to be made. You and Jason ultimately decide what you think is in the best interests of Reuben, not them, he is your baby.<BR/>With love<BR/>EricaEricaphttps://www.blogger.com/profile/08894340183289685480noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-854431892148396082008-03-23T23:26:00.000-07:002008-03-23T23:26:00.000-07:00Thank you for your thorough post...reminded me of ...Thank you for your thorough post...reminded me of a few issues that I need to discuss with Max's team. In particular...the eye "lift". I talked with his doctors about that during his initial stay but obviously at the time, we had much more serious issues to address. But I just started noticing more and more recently that his lashes are dragging...especially with the lubrication to protect his eye. Putting a call into Cranio tomorrow. I have never heard of the nose bridge surgery. As far as the facial nerve...hmmm, that's a tough one. Again I talked with his team alot in the beginning about this (I was obsessed for awhile) and they said there was research being done but they wouldn't recommend it unless it was complete palsy on both sides. I will let you know what our team says when I ask again. I probably will not go for it with Max simply because I cannot risk him losing what he does have. And let me tell you, it is amazing how much he can convey with his face and sign. Don't worry about that at all my friend! <BR/><BR/>Again, thanks for the informative post...you are an incredible mother and advocate! YAY!amy and mighty maxhttps://www.blogger.com/profile/06122039028607288945noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-24738666009912175142008-03-23T22:23:00.000-07:002008-03-23T22:23:00.000-07:00ok heres all my opinions as you asked for on the l...ok heres all my opinions as you asked for on the list i bascily wanted to read the blog first LOL well ear tubes all chargers need them at some point really good dranige and stuff scope for trach another good thing these toehr u\ops his face yes hes got parlysis lots do it is common but but if he is ok if these things dont stop him form doign things my opinion is y perform them many hugsz ellenAnonymoushttps://www.blogger.com/profile/18213376110986906604noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-85725986162820074172008-03-23T04:08:00.000-07:002008-03-23T04:08:00.000-07:00Sounds like they are giving you the grand wish lis...Sounds like they are giving you the grand wish list of everything he could possibly need/want for the next few years. I think the cranial facial nerve surgey sounds like they're going for the perfect situation and by the sounds of it, it will fade within time. I'd wait and see for this one. The smile surgery is both cosmetic and important for eating/smiling functions so very important. <BR/><BR/>Take each day as it comes, focusing on what's important each day. <BR/><BR/>Wishing you all a happy Easter. Lots of love Geraldine and Mark<BR/>xGeraldinehttps://www.blogger.com/profile/12954364201178944955noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-7748567027765757102008-03-22T10:10:00.000-07:002008-03-22T10:10:00.000-07:00Hi again, Catherine...I wanted to add to the comme...Hi again, Catherine...<BR/>I wanted to add to the comments made by Alexis regarding the facial nerve surgery... definitely explore/research the risks vs. benefits. <BR/>When this option was discussed with us regarding Gracie, we were told that there was about a 50% chance that the functioning nerve could be damaged... a risk we weren't willing to take. She must have a million different expressions and I know so much about her from each one of them... can't imagine losing that for her or us. And, my favorite place to smother her with kisses is on any of her several little dimples that form when she grins or smiles... wouldn't trade that for the world.<BR/>We were also told at the time that the surgery should be done before the age of five because much past that point the muscles in the face will not be as easily trained, thus losing some of the benefit of the surgery. We have not been told that advances have been made which lessen the risk of permanent damage... and she will be five next month... so our decision stands as is.<BR/>Regarding her nose... same with what Alexis said about Jacob... her nose is far less noticeable than when she was an infant/toddler. However, she was just prescribed glasses and it was a challenge to find a frame that fit her face and nose. She gets little marks on her bridge after just a few minutes - - so something to think about. <BR/>Also... thank you for all your detail in your post. We go back to our panel in July and I will be armed with a few questions for them thanks to your detail! :)<BR/><BR/>On a side-note about teeth... Miss Gracie LOVES the dentist and having her teeth brushed/flossed... all that oral stimulation and strong input in her jaw makes her very happy! My suggestion on this is to start brushing now... get Reuben used to it ASAP. We now use a Sonicare toothbrush and she will request her teeth to be brushed! We also go to the dentist (health permitting) every three-four months for a good "scraping" of the build up. I can only hope that Preston likes the dentist as much as she does! I won't hold my breath, though! :)<BR/><BR/>KristiKristihttps://www.blogger.com/profile/17042677454137850148noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-10570353768912883162008-03-22T05:03:00.000-07:002008-03-22T05:03:00.000-07:00Me again, Neil and I have been studing piccys of ...Me again, Neil and I have been studing piccys of Jacob at birth and the wide brdge of the nose he has definitely looked more pronounced when he was a baby compared to how it looks now. <BR/>Neil has made you a little photo montage showing the changing looks of Jacob's face....! I'll email it over!<BR/>AlexisAlexishttps://www.blogger.com/profile/09161503612230793335noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-42722586141630068212008-03-22T04:21:00.000-07:002008-03-22T04:21:00.000-07:00Hi Catherine,Definitely discuss some of the more e...Hi Catherine,<BR/><BR/>Definitely discuss some of the more experimental surgeries like the thing to the bridge of the nose and the facial nerve surgery with other parents on the Charge List.<BR/>I have not heard of any one here in the UK having the narrowing of the bridge of the nose to lose the "syndromatic look" is that purely cosmetic or are there any medical benefits at all?<BR/>I have met one family who had the nerve surgery, it was not a sucessful surgery and left the child (now a young adult) with much more noticable problems than the original facial nerve palsy. The mum was not happy with the outcome and regretted proceeding.<BR/>I understand that this was many years ago and things may have moved on - particularly as you are in USA rather than UK, however we were also advised that US consultants, where procedures are paid by insurance are much more "proactive" in recommending surgery than the UK (where as you can imagine the emphasis is to conserve NHS funds and avoid spending on unnessary surgeies where possible).<BR/>Anyway, just wanted to say you are right to talk to many other parents before you do anything you feel you may have reservations about......<BR/>AlexisAlexishttps://www.blogger.com/profile/09161503612230793335noreply@blogger.comtag:blogger.com,1999:blog-4292047283172458442.post-66855338123013994632008-03-22T00:05:00.000-07:002008-03-22T00:05:00.000-07:00My... you've been busy! "UGH" about the Bard... c...My... you've been busy! <BR/>"UGH" about the Bard... can't get break in that area, can you?<BR/><BR/>Aren't the complexities of our kiddos astounding?<BR/>I remember our first trip to our Cranial Facial Clinic/Panel... it was exhausting!<BR/>Kudos to you for being able to gather and absorb so much info. AND... you are so lucky that Reuben was such a trooper!<BR/><BR/>And, yes... I read the whole thing! :)<BR/><BR/>hugs,<BR/>KristiKristihttps://www.blogger.com/profile/17042677454137850148noreply@blogger.com